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    Last Updated: 10/30/2025

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    MediFind found 9 doctor with experience in Lhermitte-Duclos Disease near Chapel Hill, NC. Of these, 7 are Experienced and 2 are Advanced.

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    9 providers found
      Advanced in Lhermitte-Duclos Disease
      Advanced in Lhermitte-Duclos Disease

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
       (0.6 miles away)
      Languages Spoken:
      English

      Jeffrey Smith is a Radiologist in Chapel Hill, North Carolina. Dr. Smith is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Lhermitte-Duclos Disease, Focal or Multifocal Malformations in Neuronal Migration, Periventricular Heterotopia, and Subependymal Nodular Heterotopia.

      Matthew G. Ewend
      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease

      University Of North Carolina At Chapel Hill

      102 Mason Farm Rd, 
      Chapel Hill, NC 
       (1.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Matthew Ewend is a Neurosurgery provider in Chapel Hill, North Carolina. Dr. Ewend is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Pituitary Tumor, Normal Pressure Hydrocephalus, Congenital Cardiovascular Shunt, Awake Craniotomy, and Gamma Knife Radiosurgery. Dr. Ewend is currently accepting new patients.

      Advanced in Lhermitte-Duclos Disease
      Neuroradiology | Radiology
      Advanced in Lhermitte-Duclos Disease
      Neuroradiology | Radiology

      University Of North Carolina At Chapel Hill

      1350 Raleigh Rd, 
      Chapel Hill, NC 
       (2.1 miles away)
      Languages Spoken:
      English

      Carlos Zamora is a Neuroradiologist and a Radiologist in Chapel Hill, North Carolina. Dr. Zamora is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Subcortical Band Heterotopia, Corpus Callosum Dysgenesis Hypopituitarism, Cortical Dysplasia, and Lhermitte-Duclos Disease.

      Learn about our expert tiers
      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Gwenn Garden is a Neurologist in Chapel Hill, North Carolina. Dr. Garden is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Spinocerebellar Ataxia Type 7, Alzheimer's Disease, Dementia, and Olivopontocerebellar Atrophy. Dr. Garden is currently accepting new patients.

      Experienced in Lhermitte-Duclos Disease
      Neuroradiology | Radiology
      Experienced in Lhermitte-Duclos Disease
      Neuroradiology | Radiology
      101 Manning Dr, 
      Chapel Hill, NC 
       (0.7 miles away)
      Languages Spoken:
      English

      Mauricio Castillo is a Neuroradiologist and a Radiologist in Chapel Hill, North Carolina. Dr. Castillo is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Brain Herniation, Primary Lymphoma of the Brain, and Chiari Malformation Type 1.

      Experienced in Lhermitte-Duclos Disease
      Experienced in Lhermitte-Duclos Disease

      The Unity Hospital Of Rochester

      104 Wicklow Pl, 
      Chapel Hill, NC 
       (3.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Samuel Bone is a Radiologist in Chapel Hill, North Carolina. Dr. Bone is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Bronchogenic Cyst, Tenosynovitis, Gallbladder Disease, and Pleurisy. Dr. Bone is currently accepting new patients.

      David A. Leiman
      Experienced in Lhermitte-Duclos Disease
      Gastroenterology
      Experienced in Lhermitte-Duclos Disease
      Gastroenterology

      Duke Endoscopy Clinic - Clinic 2H

      40 Duke Medicine Cir, 
      Durham, NC 
       (9.2 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Offers Telehealth

      I have a clinical practice that focuses on the evaluation and management of patients with esophageal and swallowing disorders, including gastroesophageal reflux disease (GERD), eosinophilic esophagitis (EoE), Barrett’s esophagus and achalasia. Also, I have a strong academic and professional interest in health outcomes and quality of care. I am excited to be a part of Duke Health, where I can utilize revolutionary technologies like high resolution esophageal manometry and radiofrequency ablation to improve the care of my patients. Dr. Leiman is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Gastroesophageal Reflux Disease (GERD), Swallowing Difficulty, Esophagitis, Abdominal Wall Surgery, and Endoscopy.

      Matthew Ramsey
      Experienced in Lhermitte-Duclos Disease
      Radiology | Interventional Radiology
      Experienced in Lhermitte-Duclos Disease
      Radiology | Interventional Radiology

      Duke Interventional Radiology Clinic - Clinic 2B/2C

      40 Duke Medicine Cir, 
      Durham, NC 
       (9.2 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English

      I specialize in all facets of interventional radiology with special interests in musculoskeletal ablation/embolization, genicular artery embolization, prostate artery embolization, varicocele embolization, uterine artery embolization, complex IVC filter removal, portal hypertension/TIPS, complex enteral access, and interventional oncology. In my spare time, I enjoy being active, working-out, grilling, attending sporting events, and spending time with my family. Dr. Ramsey is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Ascites, Pleurisy, Pleural Effusion, Collapsed Lung, and Bone Marrow Aspiration.

      Experienced in Lhermitte-Duclos Disease
      Pediatrics | Medical Genetics
      Experienced in Lhermitte-Duclos Disease
      Pediatrics | Medical Genetics

      Duke Health Integrated Practice Inc

      4709 Creekstone Dr, Suite 300, 
      Durham, NC 
       (12.0 miles away)
      Languages Spoken:
      English

      Ermal Aliu is a Pediatrics specialist and a Medical Genetics provider in Durham, North Carolina. Dr. Aliu is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Phenylketonuria (PKU), Learman Syndrome, Microcephaly, and Symphalangism Distal.

      Showing 1-9 of 9

      Last Updated: 10/30/2025

      What is the definition of Lhermitte-Duclos Disease?

      Lhermitte-Duclos disease (LDD) is a very rare, benign (non-cancerous) brain tumor, called a dysplastic gangliocytoma of the cerebellum, that is characterized by abnormal development and enlargement of the cerebellum, and an increased intracranial pressure. LDD manifests most commonly in the third and fourth decades of life. Symptoms may include headache, nausea, cerebellar dysfunction, hydrocephalus, ataxia (problems with movement and coordination), and visual disturbances. Other features may include an enlarged brain (megalencephaly), hydromyelia, extra fingers or toes (polydactyly), partial gigantism, and/or a large tongue (macroglossia). Lhermitte-Duclos disease can occur as an isolated condition; it is also associated with a hereditary cancer syndrome called Cowden disease. Although the exact cause is unknown, genetic changes in the PTEN gene have been identified in some individuals with LDD.

      When should I see a Lhermitte-Duclos Disease doctor near Chapel Hill, NC?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Lhermitte-Duclos Disease doctor near Chapel Hill, NC?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Lhermitte-Duclos Disease doctors near Chapel Hill, NC?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Lhermitte-Duclos Disease doctors near Chapel Hill, NC?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Lhermitte-Duclos Disease doctor near Chapel Hill, NC?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Lhermitte-Duclos Disease doctor search results page. 

      Why is it important to get a second opinion from a different Lhermitte-Duclos Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Lhermitte-Duclos Disease doctor near Chapel Hill, NC?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Lhermitte-Duclos Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Lhermitte-Duclos Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Lhermitte-Duclos Disease doctors near Chapel Hill, NC?

      Look for the filter feature on the left side of the Lhermitte-Duclos Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Lhermitte-Duclos Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Lhermitte-Duclos Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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